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Old 06-08-2013, 05:52 AM   #1
momof4boys
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Smile A new journey....again!

Hi all. On battle 4 with BC. Want to share my YouTube song Carry On with all my Her-2 family. I am not a trained Singer but i believe all of us will relate to my words. Please rake the time a visit YouTube.com then under search bar type Donna Charpied it is the video with the 2 girls. I am the blonde in the pink t shirt. If anyone would like a copy on a beautiful photo with my words you can email me at donnacharpied@gmail.com.
They are giving me 2-4 months this time. Mets through blood barrier of brain. I will never give in nor give up. We need to Carry on.....
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Old 06-08-2013, 07:39 AM   #2
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Re: A new journey....again!

Dear Donna,
I was due for another good cry so much sadness and so much joy and hope in this stupid disease. I have no idea how you got through that without crying but you keep singing! Thank you for giving even in your own battle.
Cathy
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 06-08-2013, 08:44 AM   #3
momof4boys
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Re: A new journey....again!

Thank you for taking out your time to listen to the words. We all need and want to stay with those we love, have supported us throughout our journey, and have more often then not included us in their daily prayers. My heart, prayers, and positiveness reach out to you and your own personal journey. You will be in my prayers. Please keep me updated with your progress. It is important to stay on this path together!

Donna Charpied; Momof4boys
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Old 06-08-2013, 08:46 AM   #4
momof4boys
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Re: A new journey....again!

Oh, I see? Almost your BIRTHDAY????!!! If so, an early Happy Birthday to you! Another year accomplished....You go girl!
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Old 06-09-2013, 03:04 AM   #5
Paula O
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Re: A new journey....again!

Thanks for sharing, Donna. I'm adding "Carry On" to our collection of songs through the breast cancer journey thread.

((Hugs to you, you strong and courageous Mom of 4 boys!!!))),
Paula
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Old 06-09-2013, 05:43 AM   #6
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Re: A new journey....again!

Donna - what an amazing song, I am in awe and moved beyond belief.

Good luck to you

Jenny xx
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Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 06-09-2013, 07:09 AM   #7
momof4boys
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Re: A new journey....again!

Thank you sooooooo much! I hope we can find positive and inspiration out of it! Really appreciated.
Herceptin/ TDM-1 is great. So happy that my onc's office had been a part in that trial. I was in the office getting my infusion when the great news came across the world. My office was in party mode!!
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Old 06-09-2013, 07:12 AM   #8
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Re: A new journey....again!

Jenny, thank you so much for taking out your time to listen. Let's keep positive inspiration going. Everyone needs good energy!
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Old 06-09-2013, 11:59 PM   #9
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Re: A new journey....again!

It takes a tough person to face/handle a tough situation. Thanks for sharing your journey with us. We'll be cheering you on!
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Old 06-10-2013, 01:02 AM   #10
momof4boys
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Re: A new journey....again!

Dear Jackie,
Thank you! Yes, for those of us with the 'c' word, it is a journey. It is a path that I have rarely, questioned. Sometimes, it is almost a refocusing tool of which might be given to us so much easier then what I know of and read from others going through the same, if not worse times.

I had never really gone on this in the past, my husband, Frank, who is my rock, my soulmate, my foundation has been following these threads since 2003, when i was initially diagnosed.

With given 2-3 months of current survival I feel my personal need to reach out and share my positive experiences throughout this journey. I look forward to sharing with you in the future......FUTURE!

God Bless,

Donna
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Old 06-10-2013, 12:10 PM   #11
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Re: A new journey....again!

Hi Donna, just wanted to say that my thoughts, prayers, and positive energy are headed your way!
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Old 06-11-2013, 01:38 AM   #12
momof4boys
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Re: A new journey....again!

Thank you so much for your support! All is needed and is appreciated! Love the PINK KITCHEN!

Donna
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Old 06-11-2013, 09:14 AM   #13
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Re: A new journey....again!

(Aww, thanks!)
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